Partnering with Family Members of Residents who have Dementia to Implement and Evaluate the Family Carer Decision Support (FCDS) Intervention in 6 Countries
Oct 26, 2022
12:00PM to 1:30PM
Date(s) - 26/10/2022
12:00 pm - 1:30 pm
A Collaborative Conversation Series event
The McMaster Collaborative for Health and Aging presents the Collaborative Conversations Series, bringing together researchers and people with lived experiences to share their journeys and lessons learned in patient-oriented research.
Date: Wednesday, October 26, 2022
Time: 12:00 p.m. – 1:30 p.m.
Webinar Presentation: 12:00 – 1:00 p.m.
Reflecting Together: 1:00 p.m. – 1:30 p.m. (see details further below)
All are welcome to attend this event. The virtual event link will be sent to registrants upon registration and one day prior to the event.
Join our Collaborative Conversation on Wednesday, October 26 at 12:00 p.m. with Dr. Sharon June Kaasalainen, Professor of Nursing at McMaster University and Pam Holliday, family caregiver and family advisor on the Strategic Guiding Council for this research.
This conversation between research partners will help achieve the following objectives:
- To discuss the important role that family advisors bring to dementia care research
- To explore the challenges and benefits of implementing a research-based family caregiver engagement strategy in six countries
- To learn about the transnational Family Carer Decision Support (FCDS) Intervention project
Following these conversations, attendees are invited to join Reflecting Together, an opportunity for trainees and community members to come together and share their thoughts on the topics discussed. These facilitated discussions are an opportunity for attendees to continue the conversation and take our combined learnings into action.
More information about the study:
Dr. Sharon Kaasalainen joined the School of Nursing in 2002 as an Assistant Professor and became a Full Professor in 2018. She has been appointed and holds the inaugural Gladys Sharpe Chair in Nursing since 2020. In 2007 she completed a two-year CHSRF Post Doctoral Fellowship at McMaster University and was an Ontario Ministry of Health and Long Term Care Career Scientist from 2008-2011 and a HSFO/Michael G. DeGroote Chair in Cardiovascular Nursing Research Fellow in 2012. Currently, Dr. Kaasalainen is an Associate member of the Department of Family Medicine at McMaster University, an Honorary Professor at Queens University Belfast, and an Honorary Adjunct Professor in the School of Nursing and Midwifery at the University of Technology Sydney. She is a co-lead of the Strengthening a Palliative Approach in Long-Term Care (SPA-LTC) program along with a national team of health and social researchers. SPA-LTC aims to improve the quality of living and dying for residents and their family/friends in long-term care. Learn more at https://spaltc.ca.
Pam Holliday is a family caregiver. Her mother has dementia and physical limitations and has been in a long-term home for 5 years. She helped to care for her father who died at home. Pam trained as a Physical Therapist and has worked for many years in clinical research. Her work now focuses on preventing the spread of infection and consequent antibiotic resistance through new technologies designed to promote good hand hygiene. Pam has experienced the challenges of admitting a loved one to institutional care and relies on communication with the care staff about her mother’s well-being and care decisions. When the opportunity arose to join the strategic guiding council she knew that she could both contribute to, and benefit from this work.